Psychosocial issues in newborn screening for cystic fibrosis.

Abstract:

:Newborn screening for cystic fibrosis remains controversial because there is still little agreement that prophylactic interventions provide substantial long-term benefits. In such situations, where there are some medical benefits and the costs are not prohibitive, it is important to consider the psychosocial implications of screening. This paper reviews the evidence on the psychosocial issues raised by newborn screening for cystic fibrosis, in particular the issues of parental attitudes to screening, the evidence from families with an affected infant, the evidence from families with a carrier infant and the lessons for service delivery.

journal_name

Paediatr Respir Rev

authors

Parsons EP,Bradley DM

doi

10.1016/s1526-0542(03)00086-1

keywords:

subject

Has Abstract

pub_date

2003-12-01 00:00:00

pages

285-92

issue

4

eissn

1526-0542

issn

1526-0550

pii

S1526054203000861

journal_volume

4

pub_type

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