当前位置： SCI文献检索 > BMC Medicine期刊下所有文献 > Ethical challenges in global health-related stigma research.

Ethical challenges in global health-related stigma research.

Abstract：

BACKGROUND:It is critically important to conduct research on stigmatized conditions, to include marginalized groups that experience stigma, and to develop interventions to reduce stigma. However, such research is ethically challenging. Though superficial reference is frequently made to these widely acknowledged challenges, few publications have focused on ethical issues in research on stigmatized groups or conditions. In fact, a brief literature review found only two such publications. MAIN TEXT:At a recent Science of Stigma Reduction workshop comprising 60 stigma researchers from the USA and low and middle-income countries, the need for more robust and critical discussion of the ethics of the research was highlighted. In this paper we describe, illustrate through cases, and critically examine key ethical challenges that are more likely to arise because a research study focuses on health-related stigma or involves stigmatized groups or conditions. We examine the ethics of this research from two perspectives. First, through the lens of overprotection, where we discuss how the perception of stigma can impede ethical research, disrespect research participants, and narrow the research questions. Second, through the lens of research risks, where we consider how research with stigmatized populations can unintentionally result in harms. Research-related harms to participants include potential breaches of confidentiality and the exacerbation of stigma. Potential harms also extend to third parties, including families and populations who may be affected by the dissemination of research results. CONCLUSIONS:Research with stigmatized populations and on stigmatized conditions should not be impeded by unnecessary or inappropriate protective measures. Nevertheless, it may entail different and greater risks than other health research. Investigators and research ethics committees must be particularly attentive to these risks and how to manage them.

journal_name

BMC Med

journal_title

BMC medicine

authors

Millum J,Campbell M,Luna F,Malekzadeh A,Karim QA

doi

10.1186/s12916-019-1317-6

subject

Has Abstract

pub_date

2019-04-29 00:00:00

pages

issue

issn

1741-7015

pii

10.1186/s12916-019-1317-6

journal_volume

pub_type

杂志文章

在线工具

Ethical challenges in global health-related stigma research.